Speakers
Description
Objective: To standardize pediatric neurogenic bowel dysfunction management in a pediatric inpatient rehabilitation program.
Methods: An interdisciplinary taskforce including stakeholders from the clinical team, evidence review, and a family leader were used to develop the Standard of Care (SOC). A targeted search of knowledge tools from clinical practice guidelines, best practice statements, hospital policies, and pre-existing reviews were considered. Seven tools were identified and assessed for trustworthiness, comprehensiveness, utility, and pediatric relevance.
Results: The taskforce successfully developed an evidence-based SOC, providing clinicians with guidelines on assessing, curating, and evaluating a bowel routine program, aiming to achieve social continence. It also addresses how to problem-solve when a bowel care program is not effective. Preliminary evaluation results demonstrate satisfaction and perceived utility from the perspective of nurses. This SOC relates to the Best Practice Guideline (BPG), Support Self-Management in Chronic Conditions: Collaboration with Clients and Developing and Sustaining Interprofessional Health Care: Optimizing patient, organizational and system outcomes.
Outcomes: Involving key stakeholders in the development of this standard led to the formation of a pediatric neurogenic bowel care evaluation and decision-making algorithm to problem-solve when a bowel routine is not effective. Following the rollout of the SOC, this information was disseminated to external partners and is available to families. Family-facing educational materials were adapted to empower families to help support with self-management and highlight public visibility and outcomes.
Author(s) Credentials and Title
Rudden, Louise, EN (EC), NP Pediatrics, Holland Bloorview Kids Rehabilitation Hospital, University of Toronto
Kassam-Lallani, Dilshad BSN MN NP-PHC, Holland Bloorview Kids Rehabilitation Hospital
Truong, Cindy, RN, BScN, MN, CCNE, NSWOC, WOCC(C) Holland Bloorview Kids Rehabilitation Hospital, University of Toronto
Canham, Emilie, RN, BA, BScN, MN, Holland Bloorview Kids Rehabilitation Hospital
Mullin, Amy RN BScN, Holland Bloorview Kids Rehabilitation Hospital
Jones, Carly, RN, BScN, Holland Bloorview Kids Rehabilitation Hospital
Keywords
Neurogenic Bowel
Pediatrics
Bowel Routine
Spinal Cord Injuries
What RNAO BPG or tool/toolkit is this work related to:
- Support Self-Management in Chronic Conditions
- Collaboration with Clients and Developing and Sustaining Interprofessional Health Care: Optimizing patient, organizational and system outcomes
Organization Name | Holland Bloorview Kids Rehabilitation Hospital |
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